Living With Autism
As those close to me know, my son has autism.
Having a child that is "special" has substantially changed my view of the whole world. As I grew up, I was always one of the smartest and most athletic kids among my peers. It makes me sad to think back, how I used to make fun of, look down at, or generally ostrasize children who were "different", who were "special".
Now, as the prod mother of an autistic child, I feel as if I am on the "outside" sometimes. Friends and family just do not understand why we can not do the things that other "normal" families do.
My son has required 24/7 care for the last 6 years of his life. Very recently, I have trusted him enough to get a yogurt out of the fridge alone, or brush his teeth alone but, other than the very recent past, I have spent every moment of my life within arm's length of Ethan.
He requires this level of attention because he has no conception of what "danger" is. Furthermore, he has not had the capacity to learn what "danger" is like "normal" children do. He has touched the oven many times, cut body parts with scissors, eaten isulation from an unfinished basement, run out into 4 lane highway, etc. Trips to the emergency room have been a regular occurrance, despite my vigilance.
My son alo makes alot of noise, regardless of the situation. He becomes impatient and cries alot. He is very clumsy and falls alot. He also has sensory integration issues, that cause him not to be able to sit still for more then a few minutes. He paces constantly. He tantrums alot too. He is the "size" of a "normal" six year old, so this all causes problems of its own. I currently live in an apartment, and my neighbors complain.
My son has the vocabulary of a 2 year old. His social skills currently hover around 3 years of age, and this is only with many years of hard work. His emotional age is around 2. His intellectual skills, however, are equal to the skills of a 10 year old. The mix of age, skills, and abilities makes things complicated as well. Remember, too, that he "looks normal." This causes alot of scathing, intruive, and mean comments from people almost every time we leave the house (ie- Your son is so badly behaved. He needs a good spanking.)
I write this post to try to give everyone who reads it an idea of what life with a "special child" is like. It is my hopes that this post may breed:
Understanding.
Hope.
Support.
Almost 1% of American children today has a disorder that falls along the autism spectrum. To learn more please visit the Autism Society of America
http://www.autism-society.org/site/PageServer
Having a child that is "special" has substantially changed my view of the whole world. As I grew up, I was always one of the smartest and most athletic kids among my peers. It makes me sad to think back, how I used to make fun of, look down at, or generally ostrasize children who were "different", who were "special".
Now, as the prod mother of an autistic child, I feel as if I am on the "outside" sometimes. Friends and family just do not understand why we can not do the things that other "normal" families do.
My son has required 24/7 care for the last 6 years of his life. Very recently, I have trusted him enough to get a yogurt out of the fridge alone, or brush his teeth alone but, other than the very recent past, I have spent every moment of my life within arm's length of Ethan.
He requires this level of attention because he has no conception of what "danger" is. Furthermore, he has not had the capacity to learn what "danger" is like "normal" children do. He has touched the oven many times, cut body parts with scissors, eaten isulation from an unfinished basement, run out into 4 lane highway, etc. Trips to the emergency room have been a regular occurrance, despite my vigilance.
My son alo makes alot of noise, regardless of the situation. He becomes impatient and cries alot. He is very clumsy and falls alot. He also has sensory integration issues, that cause him not to be able to sit still for more then a few minutes. He paces constantly. He tantrums alot too. He is the "size" of a "normal" six year old, so this all causes problems of its own. I currently live in an apartment, and my neighbors complain.
My son has the vocabulary of a 2 year old. His social skills currently hover around 3 years of age, and this is only with many years of hard work. His emotional age is around 2. His intellectual skills, however, are equal to the skills of a 10 year old. The mix of age, skills, and abilities makes things complicated as well. Remember, too, that he "looks normal." This causes alot of scathing, intruive, and mean comments from people almost every time we leave the house (ie- Your son is so badly behaved. He needs a good spanking.)
I write this post to try to give everyone who reads it an idea of what life with a "special child" is like. It is my hopes that this post may breed:
Understanding.
Hope.
Support.
Almost 1% of American children today has a disorder that falls along the autism spectrum. To learn more please visit the Autism Society of America
http://www.autism-society.org/site/PageServer


5 Comments:
At Sunday, November 13, 2005,
piu piu said…
i'm glad youre feeling generally more positive after the low of recently.
Its really interesting, and heartbreaking, to hear of your son's difficulties. lucky for him he has a strong mum! i often think of how cruel i've been to people in the past- kids, or adults- people with problems that arent necessarily easy to read.....i guess the only thing you can do is be a generally good person- sounds cheesy but i think being tolerant and kind to strangers can mean a lot...
At Sunday, November 13, 2005,
"Jet" said…
You are an inspiration!!
Thanks for stopping by!
At Sunday, November 13, 2005,
Pause said…
You handle the situation so well. I know it gets hard but your patience really pays off.
At Tuesday, November 15, 2005,
Berlinbound said…
I was a lawyer once and a father now ... The fathering is the bigger challenge and the bigger reward. Godspeed in both your roles.
At Tuesday, November 15, 2005,
Berlinbound said…
Oh ... and I'm a kinky catholic too ...
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